Thursday, May 15, 2008

May trip to New York

We just got back from our 5th trip to NY. We are all a little tired but the good news is everything went well. The Laser surgery went good and Dr. Levitin told us that we would be coming back every four weeks for at least two more surgeries. The good news is that he also told us the rapid growth phase of the hemangioma is for the most part over. And that hopefully by late summer or early fall they can start taking some of the tumor away. This news was good but it also made us very uneasy. Mainly because this is a new step that we are unfamiliar with and the unknown always scares us. The future surgeries themselves take on a whole new aspect to Sarah's treatment and will require our stays to be longer. But we are strong and will get through this. Please pray for our family that we will stay strong and can meet these tasks head on.

The picture of Sarah sitting by herself was taken the day before surgery in central park. The picture of Sarah on mommy's shoulders was after surgery that same day. Surgery was at 7:30 that morning so after a nap and some lunch we decided to take Sarah to the Central Park Zoo. As you can tell she was having fun!


Jenn said...

I just found your blog based on a comment that was left by your dad on a Fox News story regarding another girl who was treated by Dr. Waner. I wanted to let you know that I think Sarah is beautiful and you are in great hands as you know. My daughter Andi is 11.5 months old and had an excision surgery beginning of April with Dr. Waner, Dr. Levitin, Dr. Thompson, and Dr. Fay from Boston. We have been so blessed with our results from her hemangioma that was behind her eye.

Good luck with your continued journey and know that you are not alone! May God Bless you and your family.

eugeniipresenta said...
This comment has been removed by the author.
eugeniipresenta said...

Im Eugenia, Im 16 (sorry for my english i dont speak it very well) Im from Argentina and i speak spansh.
I have had an hemangioma on my right cheek, it was a gigant hemangioma.
When i was 8 and 9 doctors made me three plastic surgeries to remove it. They remove like 90% of the hemangioma, so i have to continue with the surgeries. Of course i wanna get better and im gonna do more treatments, but im learning how to love myself just the way i am, and it feels really good.

My experience is so long to write it on a comment, So i hope I can talk to you by e-mail, to tell you my experience, maybe it would help in some way, and we can talk about something that we know. If you want to contact to me just write me to:

I wanna tell you that Sarah is soo beautiful, and you are really wonderfull parents for doing this.
My best wishes for Sarah and you.
Everything's fine