Tuesday, February 26, 2008

Update on Sarah

As of February 11th Sarah is completely off of the steroids that she began at two and a half weeks old. Sarah's doctors have decided now that she is getting laser treatment once a month that the steroid use is no longer a necessity and the side effects are not worth keeping her on them.

After two weeks of being off the steroids we noticed the hemangiomas had started growing on the inside of her lip. We immediately took her to the hematologist Dr. Mogul. After talking with Dr. Mogul we decided it was time for another MRI because of the new growth on the lip we were concerned about the growth on the inside near her airway and behind her eye revealed on previous MRIs.

After getting the results of the MRI the good news is that there is no new growth anywhere but her mouth and since there is no obstruction with her eating or breathing chemotherapy is not required at this time.

Sarah is very happy to be off of the steroids,she is playing more during the day and interacting with us more. Plus she is now sleeping through the night. She has also been working on her first tooth, expected to arrive any day.

Monday, February 18, 2008

2nd trip to New York

The image of Sarah with the John Deere hat on was taken a few days before 2nd surgery. The other picture was taken a day after the 2nd surgery.If you notice in the first surgery picture the ulceration under her lip is pretty bad but in the John deere picture it has cleared up fairly well. Now she has an ulceration on her right cheek. The 2nd laser surgery hopefully will take care of that one.

Before and After Sarah's first laser surgery

The picture on bottom is of sarah before surgery. The picture on the top is after the first laser surgery.

Thursday, February 7, 2008

The Three of Us Right after Laser Surgery...

Sarah's first bottle after 8 hours of no food, so that she wouldn't get sick during the surgery.