I wanted to tell everyone thank you for all of the support we have received thru prayers and the fund raisers that have been put on for Sarah. There are so many people who have helped I could not begin to try naming all of them. When you are in a situation like the one we are in you definitely know who the folks are that really care. I hope that everyone knows how much my family and I appreciate the help. Please continue to pray that Sarah will get well and that the tumors will quit growing. You never know what life will bring your way but it's a comfort to know what others are willing to do for you.
Sincerely,
Chuck Porter
Monday, April 21, 2008
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HELLO,
MY NAME IS BRANDI. MY DAUGHTER WAS BORN WITH A CONGENALTAL NEVI ON HER CHEST. IT IS A GIANT ONE AND IT TAKES OVER HER WHOLE CHEST. WE ARE GOING TO CHAPEL HILL WHERE WE HAVE A WONDERFULL SURGEON. SHE HAD HER FIRST SURGERY AT 7 MONTHES OLD WHICH WAS DEVASTATING. SHE IS NOW 2 YEARS OLD AND WE JUST GOT THROUGH WITH HER LAST SURGERY. SHE HAS BEEN THROUGH SO MUCH IN HER LITTLE LIFE. SHE HAD TO BASICALLY GET A WHOLE NEW CHEST. SHE HAD TISSUE EXPANDERS IN HER AND WE HAD TO GO BACK EVERY WEEK FOR 8 WEEKS STARIGHT TO GET THEM INFLATED TO STRETCH HER SKIN SO HE COULD USE THAT STRETCHED SKIN TO FORM HER NEW CHEST. HE ALSO HAD TO DO SKIN GRAPH TO FINISH OUT FORMING HER NEW CHEST. HE TOOK SOME SKIN FROM HER GROWING AREA SO PUT ON HER CHEST. A CONGENALTAL NEVI IS A GIANT MOLE AND IF WE DIDNT GET IT REMOVED IT COULD CAUSE MELANOMA CANCER AND PLUS IT WOULD GROW WITH HER AND TAKE OVER HER WHOLE TOP OF HER BODY. IM SO SORRY YOUR LITTLE GIRL WAS BORN LIKE THAT. I HAVE HAD A ROUGH TIME DEALING WITH THIS WITH MY DAUGHTER BUT PRAISE GOD HE HAS BROUGHT US THROUGH THIS AND MAYBE WE CAN GO ON WITH OUR LIVES. I HOPE AND PRAY EVERYTHING GOES WELL WITH YOUR DAUGHTER AND WE WILL BE PRAYING FOR HER AND YOUR FAMILY.
SINCERELY,
BRANDI
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